Martin’s. She had sneaked out of her bedroom window.
Later, after she’d been similarly found at a Meijer store, they
invested in window and door alarms.
Upon arriving home one day, they found an empty case of Pop-Tarts.
“April is very clever,” John says, “and she discovered she could order
Testing the system
Dr. Bryan Hainline, a biochemical geneticist for Riley Hospital for
Children at Indiana University Health in Indianapolis, has treated
Prader-Willi children for more than two decades.
He is upfront with parents, even those of newborns who haven’t yet
exhibited the extreme hunger or other defining manifestations.
Testing, diagnoses and treatments have advanced greatly, Hainline
says. Growth hormone can help with body mass and muscle tone,
improving metabolism and slowing the rapid weight gain that haunts
these patients. Anti-depressants such as Prozac can combat common
behaviors, such as temper tantrums and violence, that emerge in
Even so, Hainline says, no cure exists for what is a tiring and
difficult syndrome for parents to manage.